Myalgic encephalomyelitis has no standard diagnosis or cure, and yet there are 20 million sufferers in the world, with 30,000 of them being children in the UK alone. It receives little research funding from government agencies in the UK, USA, Europe and worldwide.
For over 25 years the research that has taken place has caused a renaming of the disease to Chronic Fatigue Syndrome, which instead of bringing clarity, has brought confusion breaking CFS into multiple diagnosis, of which none of them were physical.
This misrepresentation has existed on both sides of the Atlantic to this day.
In 2007 in the US the Centre of Disease Control and Prevention formed an investigative panel which concluded CFS could be seen as a public health problem, while currently not seen as a priority.
Thousands have signed petitions to ask the CDC to change their definitions, which they continue to ignore.
Also in the UK the recommended treatment for ME is CBT or cognitive behavioral therapy which is recommended from the psychiatric lobby for the NICE (National Institute of Health and Clinical Excellence) guidelines.
When examining private research findings, what is becoming more apparent is that CFS is actually a transmissible disease, which could affect thousands, if not millions more.
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